Autism 101: A Parent’s Guide to the First Steps After Diagnosis
In this blog post, I share insights into essential steps to take following an autism diagnosis. From prioritizing learning and establishing a support network to advocating for early intervention and championing your child's needs, I discuss key strategies to enhance both your and your child's journey. These recommendations are not only practical but also have the potential to improve your family's experience.
Educate Yourself: After receiving an autism, diagnosis, it’s important to educate yourself about Autism Spectrum Disorder (ASD). Understanding the characteristics, strengths, and differences, associated with autism will empower you to better support your child. You can start by reading reliable sources, attending workshops and support groups, and connecting with other parents in the autism community.
Websites:
Autism Speaks (www.autismspeaks.org)
The Autism Society of America (www.autism-society.org)
The National Autistic Society (www.autism.org.uk)
Books:
“The Highly Sensitive Child: Helping Our Children Thrive When the World Overwhelms Them" by Elaine N. Aron.
"NeuroTribes: The Legacy of Autism and the Future of Neurodiversity" by Steve Silberman
"Uniquely Human: A Different Way of Seeing Autism" by Barry M. Prizant
Build Your Tribe: You are not alone on this journey. Building a strong support network of family members, friends, therapists, educators, and other parents of children with autism can provide guidance, encouragement, and understanding. Don’t hesitate to reach out for help and surround yourself with a team of people who are dedicated to your child’s well-being.
Early Intervention Matters: Early intervention is key for children with autism. Research local early intervention programs and services that can provide therapies, interventions, and support tailored to your child’s unique needs. These services ca help your child develop the necessary skills they need to reach their full potential.
Be Your Child’s Advocate: As a parent, you are your child’s best advocate. Learn about your child’s rights, available services, and resources. Stand up for your child’s needs within the school system, healthcare settings, and community to ensure they receive the support they deserve.
Celebrate the Wins: While it’s important to address that challenges associated with autism, don’t forget to celebrate your child’s strengths and accomplishments. Focus on their unique abilities, interests, and talents, and encourage them to pursue their passions. Every small milestone is worth celebrating on this journey.
My Story: When my son was diagnosed with autism at 3, it felt scared and overwhelmed, but I knew I had to act fast. I started searching the internet, for any information or resources I could find. The pediatrician suggested speech therapy since my son wasn't speaking much by age two and a half. I followed their advice and my son started speech therapy fairly quickly. I also reached out to the school district and the Regional Center once he turned 3 for an autism evaluation.
When the psychologists confirmed the diagnosis, I felt a mix of emotions. Fear, uncertainty, and a million questions flooded my mind. What services could help him? Where could I find support? I discovered an intensive preschool autism program nearby through the school district and learned about resources like Autism Speaks and the Special Needs Resource Fair. It was there that I connected with my first moms group, clinging to every pamphlet and opportunity to learn and connect.
Despite my nerves, my main focus was clear: I wanted my son to thrive, not just survive. That's when I began to look into early intervention ABA therapy services and worked tirelessly with the Regional Center to secure early intervention services. With speech therapy, the preschool program, and early intervention, by the time my son turned 5, he was ready to step into a general education kindergarten class with support.
The journey wasn't without its battles. I had to advocate for my son to ensure he had the aid and resources he needed to succeed in the classroom. And I refused to give in. I even purchased items for my son, if that was what he needed to thrive in the classroom. My goal was to see him transition from special education to a mainstream classroom, and eventually, I made it happen. Discovering his was gifted in visual spatial abilities along the way was a revelation. It made me realize that he wasn't just facing challenges; he had incredible gifts too. Believe it out not most of autistic individuals are twice-exceptional, meaning they display exceptional abilities in one or more areas alongside learning challenges and disabilities, requiring unique education approaches to support their diverse needs.
As he grew, my goals shifted. By middle school, he no longer needed an aid in class. Instead, I focused on crafting his Individualized Education Plan (IEP) to cater to his unique academic and social-emotional needs. And now, as he graduates 8th grade with straight A’s, I couldn't be prouder. Through all the ups and downs over the past 10 years, one thing remains clear: every hurdle was worth it.
Looking ahead, I'm filled with hope. I've instilled in my son the advocacy skills he needs to chase his dreams, of writing books and creating animated movies. This journey isn’t easy but it is necessary to the growth and success of our exceptional children.
